Simons Searchlight is an online international research program, building an ever growing natural history database, biorepository, and resource network of over 185 rare genetic neurodevelopmental disorders. By joining our community and sharing your experiences, you contribute to a growing database used by scientists worldwide to advance the understanding of these conditions. Through online surveys and optional blood sample collection, we gather valuable information to improve lives and drive scientific progress. Families like ours are the key to making meaningful progress.

The team at Simons Searchlight is eager to meet CHD2 families and help them join their natural history study. The data they collect are instrumental in our ability to move towards clinical trials for CHD2 treatments. You can find more about it here: https://www.simonssearchlight.org/research/what-we-study/chd2/ 

Please click here to sign up! 

Questions? Email Coordinator@SimonsSearchlight.org