About Us
Coalition to Cure CHD2 came together in 2020 when two mothers, Christine Salmi and Lauren Malko, were eager to help their children suffering from seizures associated with CHD2-related disorder (CHD2-RD). After finding each other, their hope was to connect with more patients and families who could join them in their vision for a cure. Their efforts led to what has become a global foundation, spanning over 40 countries and representing more than 300 CHD2 patients.
Mission
The Coalition to Cure CHD2 (CCC)’s mission is to improve the lives of those affected by CHD2-related disorders by increasing education, building a community, and accelerating research to uncover a cure.
Vision
To find safe and effective treatments that will cure CHD2-related disorders.
Our Team
CCC is led by a volunteer Board of Directors consisting of CHD2 parents and rare disease experts, working closely with our Executive Director and team of volunteers. We look forward to meeting you and hope you will get involved with our organization.
Meet Our Team
Scientific Advisory Board
The Scientific Advisory Board’s role is to advise CCC’s board of directors on strategic initiatives that support the mission of CCC. Led by Dr. Gemma Carvill, the SAB is comprised of leading scientists and clinicians around the United States. Their duties include reviewing and advising research grant applications and proposals, meeting annually to discuss the landscape of CHD2 research, and providing expert opinions about the direction of CCC's research program. We gratefully acknowledge their time and dedication to CCC's mission.
Learn More About Our Scientific Advisory Board
CCC Partners
CCC is proud to partner with organizations that bring much needed resources to families living with CHD2-related disorders. These collaborations strive to exemplify the need for awareness and education in order to discover better and faster treatments for patients. We are grateful for our partners who value the services that align with our mission.
View Our Partners