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Ongoing Studies

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RARE-X Study

Participating in a data collection program is one of the most important things that families with a child with CHD2-related neurodevelopmental disorders can do.

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CHD2 In Adults

This study aims to understand seizures, communication and daily living of adults with CHD2 mutations.

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Citizen Health

Natural History Studies (NHS) are critical to the drug development process. Citizen Health has developed a new method to make this process easier.

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Videos

We need you! Please register your loved one with us so we can speed up the pace to find a cure for CHD2-related disorders Register Here