Get Involved

In ultra-rare disease, it is often difficult to justify developing a new medication for just a handful of children and even more so if you don’t understand the disease.

Make a donation to help
find a cure for CHD2

Find opportunities to
volunteer

Get Involved

Facebook Support Group

Support group for parents, caregivers, family members of children/youth/adults who are affected by a mutation/ deletion of the CHD2 gene.

Raise Awareness

One of the best things you can do is help educate others about CHD2-Related Neurodevelopmental Disorder. CHD2 Awareness Day is February 2 annually.

See Events Page 
Host a Fundraiser

There are endless ways to host a fundraiser – from partnering with local businesses to creating your own personal fundraising event. Visit our fundraising page for ideas!

Fundraising Ideas 

Fundraising Teams 

We need you! Please register your case with us so we can speed up the pace to find a cure for CHD2-related disorders Register Here